About Us

Pseudomyxoma Survivor is the home of the support network for survivors and carers of Pseudomyxoma Peritonei (PMP).

Our support network offers emotional encouragement and a community where fellow patients and caregivers can collaborate online. This allows us to share our stories, enforcing the fact that we are not alone in this fight, as well as further the growing online PMP community. The community has already proven an invaluable source of strength to so many survivors of this rare disease.

We provide a buddy system and practical and emotional help and advice on managing symptoms and all aspects of living and surviving with this rare disease. We also organise fundraising to raise money to fund essential equipment for UK PMP centres of excellence and for funding for research opportunities in the UK into the treatment of PMP.

Pseudomyxoma Survivor is a registered charity in England and Wales, number 1143642

- See more at: http://www.pseudomyxomasurvivor.org/

Press releases

The one in a million cancer

The one in a million cancer Called the 'one in a million cancer' or the jelly belly disease', pseudomyxoma peritonei (PMP) is a rare cancer, which... read more

Press Release • 20.04.2015 • By Pseudomyxoma Survivor

Pseudomyxoma Survivor is delighted to announce the patronage of Sean...

For the first time in the history of the charity, Pseudomyxoma Survivor is proud to announce its very first patron: Sean Hepburn Ferrer. Sean is... read more

Press Release • 05.03.2014 • By Pseudomyxoma Survivor

Joining Together for Better Care

The theme of International Rare Disease Day 2014 is “Join Together for Better Care”. As patients and caregivers who have been impacted by... read more

Press Release • 28.02.2014 • By Pseudomyxoma Survivor

Mankini Boys feature in calendar to support charity

Four men who wore mankinis for a day to raise money for a charity are now featured in a calendar which also supports the charity. Gareth, Paul,... read more

Press Release • 13.11.2013 • By Pseudomyxoma Survivor

Rothley to host charity jazz night

A jazz evening will be held in Rothley in aid of Pseudomyxoma Survivor. The Jackpots jazz band will be performing at the Rothley Centre,... read more

Press Release • 11.10.2013 • By Pseudomyxoma Survivor

Kettering to host charity show

Prepare to be scared in Kettering this weekend in aid of Pseudomyxoma Survivor Starlight Dance & Musical Theatre School’s National Award Winning... read more

Press Release • 11.10.2013 • By Pseudomyxoma Survivor

Sean Hepburn Ferrer becomes Rare Disease Day Ambassador

Sean Hepburn Ferrer has become a Rare Disease Day Ambassador for EURODIS, the European organisation for rare diseases. Sean Ferrer's mother, the... read more

Press Release • 07.08.2013 • By Pseudomyxoma Survivor

PMP Awareness Month brings attention to rare cancer

Changes in bowel habit, loss of appetite and abdominal swelling are all symptoms of many common illnesses but they are are also key symptoms of... read more

Press Release • 31.07.2013 • By Pseudomyxoma Survivor